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Report Links, Disability perception (Academic Article), Disabled kids and the family (Academic Article)
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- Disabling
Imagery This website provides a wealth of information on how disability
has been represented in moving image from the earliest days. The approach
is from a disability equality and human rights perspective, which draws on
the collective thinking of the Disabled People's Movement. Therefore, whether
you are experienced in Media Studies/English teaching and/or have some understanding
of disability issues, it's important to read the Introduction and Ways of
thinking about disability before moving on to look at the film and teaching
sections.
- DISABILITY
ISSUES RESOURCE NOTES: "Power, Oppression and Disability" 1993
- Towards
a UN Disability Convention
- Hospital
gives elderly the chance to choose how and when they die
23/02/2003 it starts with "An NHS trust is to offer elderly
patients a choice of how and where they would like to die should they become
seriously ill. The Hammersmith Hospitals NHS Trust in west London will be
the first in Britain to ask patients to write a "living will", informing
doctors when to stop treatment if their health deteriorates and they are unable
to communicate their wishes. Elderly patients will be asked to imagine that
they had cancer, advanced dementia, were bedbound by a stroke, doubly incontinent,
blind, or confined to a wheelchair.... NEW
- Wheel Power Celebrating
All Things Disabled a Newspaper column in Malaysia written by a disabled person
in Malaysia the archives for this column are in the Asian section of this
webpage
- DISABLED
RESOURCESMany of us unknowingly carry prejudices and misconceptions about
people with disabilities. Sometimes, these are magnified in the media. This
page was developed to put the media in touch with credible sources on the
disabled and related issues related.
- Mother's Reason Handicapped
Families and Disabled Children
- 'Will
he change his socks?' Once hidden from society, people with Down's syndrome
now lead long and independent lives. Carol Boys on the challenges facing her
son Alex as he leaves home
- Disability Culture
- A
poem by J Cheu
- Disability History
Museum
- Tuisku's
storyWhen my daughter Tuisku, now in Mulberry’s Toddler class,
was born about two years ago, diagnosed with Down syndrome...
- 'Will
he change his socks?' April 2002Once hidden from society, people with
Down's syndrome now lead long and independent lives. Carol Boys on the challenges
facing her son Alex as he leaves home
- spiked-health
| Article | Medicalising everyday life
- bmj.com
324 (7343): 0i
- Ananova
- Your personal web pageFirms reluctant to take on disabled - report 12th
March 2002
- http://www3.who.int/icf/icftemplate.cfm
International Classification of Functioning,
Disability and Health
- ICIDH
Meets Postmodernism, or 'Incredulity toward Meta-Terminology
- Reconceptualizing health
care APA's work will guide health-care professionals in using a new system
for classifying human functioning. January 2002
- Personal
Stories by Students, Volunteers and Individuals
- (W)Riting
the Body in the Wild
- Chinese Culture
and Disability
- Culture
Brokering Monograph from the Center for International Rehabilitation Research
Information and Exchange
- Disability
Culture - Institute on Independent Living Newsletter 12/2001
- http://www.isuma.net/v02n03/taylor/taylor_e.pdf
Genetics Normalcy and Disability
- Critic
of the Dawn
- 'Nazi'
Medicine: Clinton Tried to Redefine 'Child' and 'Fetus'
Disability perception/Definition of Disability
- Down syndrome, redefined
Down syndrome is a naturally occurring chromosomal arrangement that has always
been a part of the human condition. The occurrence of Down syndrome is universal
across racial and gender lines, and it is present in approximately one in
800 births in Canada. Down syndrome is not a disease, disorder, defect or
medical condition. It is inappropriate and offensive to refer to people with
Down syndrome as "afflicted with" or "suffering from"
it. Down syndrome itself does not require either treatment or prevention.
......Approved November 2003 NEW
- ADD a different
perspective Thom Hartmann's Hunter and Farmer Approach to ADD/ADHD NEW
- Autism,
the demand for advocacy
- A4 Australia
- The Maze
- Autistic Advocacy
- autistics.org
- Neurodiversity
- Children with disability
at risk of victimisation
- Asperger info
- Position
Paperon Definition of Disability by Disabled people international (DPI)
- International Classification
of Functioning, Disability and Health
- Definitions
of Disability in Europe:
- Autistic Advocacy
- The Evil in Preventing
Autism
- Don't Cure Autism
Now!
- Revolution! Vic
Finkelstein tells a fable of turning tables.
- Inspiration
By John B. Kelly Katie Lynch, 28 inches tall and a wheelchair user all
her life, was an inspiration. After her death last fall at the age of 27,
her Boston Globe obituary described her as "a tiny woman who inspired
thousands when she overcame dramatic physical limitations to run her own version
of the Boston Marathon."
- Disabled
Lives: Who Cares?Martha C. Nussbaum NEW
- Critic of the
Dawn reply by Cal Montgomery NEW
- 'Disabled
Lives' -- a commentaryBy David Pfeiffer NEW
- Planet
autism by Scott SeaLast summer, a man in California shot his 27-year-old
autistic son to death and then shot himself. I understand why. NEW
Disability perception/Academic Article
- Psychiatr Serv 52:1633-1638, December 2001Stigma
as a Barrier to Recovery: The Extent to Which Caregivers Believe Most People
Devalue Consumers and Their Families Elmer L. Struening, Ph.D., Deborah
A. Perlick, Ph.D., Bruce G. Link, Ph.D., Fredric Hellman, B.A., Daniel Herman,
D.S.W. and Jo Anne Sirey, Ph.D. NEW
- Perceptions
and impact of bipolar disorder: how far have we really come? Results of
the national depressive and manic-depressive association 2000 survey of individuals
with bipolar disorder Hirschfeld RM, Lewis L, Vornik LA. NEW
- [Economic
impact of bipolar mood disorders] in French NEW
- Courage
in a brave new world: A disability perspective.By Erik Leipoldt Posted
10/12/02 NEW
- Of
victims and heroes:Superman to the rescue in Australia? by Erik Leipoldt
Perth, Jan. 28, 2003 NEW
- Understanding
Disability Dr Tom Shakespeare NEW
- Articles on Dis Culture/Rights
Japan New
- DIFFERENCE, EQUALITY AND
DISABLED PEOPLE:DISABILITY RIGHTS AND DISABILITY CULTURE by Osame Nagase
NEW
- THE POLITICAL ECONOMY OF
DISABLEMENT: ADVANCES AND CONTRADICTIONS Marta Russell and Ravi Malhotra
NEW
- Quality
of Life Perceptions of Ventilator-Assisted IndividualsIVUN International
Ventilator Users Network From IVUN News: Spring 1990, Vol. 4, No. 1 NEW
- Patient Quality
of Life: Should Doctors Guess It and Use It? NEW
- Entrez-PubMedAm
J Public Health 1999 Nov;89(11):1649-57 Prenatal diagnosis and selective abortion:
a challenge to practice and policy. Asch A.Comment on: Am J Public Health.
1999 Nov;89(11):1649-57.
- Entrez-PubMedHarris
J., 2000 Is there a coherent social conception of disability?
in J. of Medical Ethics, 26, Seiten. 95-100
- Entrez-PubMedCushman,
LA und Dijkers, MP, 1990 Depressed mood in spinal cord injured
patients: staff perceptions and patient realities. Archives of Physical Medicine
and Rehabilitation, , vol. 71, Seiten 191-196.
- Entrez-PubMedLehmann,J.P.;
Roberto,K.A. 1996 Comparison of factors influencing mothers'
perceptions about the futures of their adolescent children with and without
disabilities Mental Retardation 34 Seiten 27-38;
- Entrez-PubMedMarteau
and Johnston 1986 Determinants of beliefs about illness:
a study of parents of children with diabetes, asthma, epilepsy, and no chronic
illness. Journal of Psychosomatic Research 30: 673-683
- Entrez-PubMedPueschel
SM, Monteiro LA, Erickson M. 1986 Parents' and physicians'
perceptions of facial plastic surgery in children with Down's syndrome. J.
Mental. Deficiency. Research 30: 71-79
- Entrez-PubMedRay
C West J 1984, Social, sexual and personal
implications of paraplegia Paraplegia, 1984, vol.
22, 75-86
- Entrez-PubMedReynier
J., Aurran C., Dumaret Y., Maron A., Chabal A., Giraud G., Ayme S 1995
Attitudes towards Down's syndrome: follow up of a cohort of 280 cases. Journal
of Medical Genetics.32(8):597-9
- Entrez-PubMedSoc
Sci Med 2001 Sep;53(5):627-38Down's syndrome: cost, quality and value of life.
Alderson P. This paper questions whether Down's syndrome necessarily involves
the costs, limitations and
suffering which are assumed in the prenatal literature, and examines the lack
of evidence about the value and quality of life with Down's syndrome.
- Entrez-PubMed
Ment Retard 2001 Dec;39(6):436-51 Public and professional constructions of
mental retardation: glen ridge and the missing narrative of disability rights.Biklen
D, Lambert Schein P.
- Entrez-PubMed
Phys Med Rehabil Clin N Am 2001 Aug;12(3):621-36Disability evaluation and
impairment rating for the person with an amputation.Meier RH 3rd.
- Entrez-PubMedJ
Community Health Nurs 2001 Winter;18(4):213-22Physical illness: social construction
or biological imperative?Petersen S, Heesacker M, Schwartz RC.
- Entrez-PubMedMent
Retard 2001 Dec;39(6):452-60Reason and value: the thought of plato and aristotle
and the construction of intellectual disability.Stainton T.
- Entrez-PubMedMent
Retard 2001 Oct;39(5):379-90 Inquiry cantos: poetics of developmental disability.
Smith P.
- Entrez-PubMedMent
Retard 2001 Aug;39(4):286-96Construction of adulthood and disability.Jordan
B, Dunlap G.
- Entrez-PubMedDisabil
Rehabil 2001 Feb 15-Mar 10;23(3-4):167-76Having friends and Rett syndrome:
how social relationships create meaningful contexts for limited skills.Evans
IM, Meyer LH.
- Entrez-PubMedDisabil
Rehabil 2000 Jul 20;22(11):509-12; discussion 526-7Walking the en-abling/dis-abling
symbolic tightrope: toward a constitutive, dialectical view of disability
symbolism.Frey LR, Upchurch CM.
- Entrez-PubMed
Kennedy Inst Ethics J 1997 Sep;7(3):231-51Ethical issues in cochlear implant
surgery: an exploration into disease, disability, and the best interests of
the child.Lane H, Grodin M.
- Entrez-PubMedPsychoanal
Q 2001;70(3):549-78On the connection between physical defects and the character
type of the "exception".Fernando J. A clinical and theoretical study is presented
of the effects of physical defects on character structure, especially on its
narcissistic aspects. The basic thesis of this paper is that there are two
differentiable responses to awareness of a physical disability: various forms
of denial, and a clinging to narcissistic overgratifications as a compensation
for negative feelings about the self. The first response, of overusing denial,
is universal, and of course leaves its mark on a person's character. However,
only the second sort of response, of clinging to overgratifications, leads
to the character type of the "exception" (Freud 1916). The distinction between
moral ideals, embodied in the ego ideal narrowly defined, and nonmoral ideals,
embodied especially in the wishful self-image, is presented as a useful tool
in understanding various psychological effects of physical disabilities.
- bmj.com
Higginson and Carr 322 (7297): 1297 Measuring quality of life
Disabled kids and the family /Academic Article
- Divorce
rate
- Living
with Down Syndrome: The Family Experience Marcia Van Riper 1999
- Families
of children with Down syndrome
- Entrez-PubMedMent
Retard 2000 Jun;38(3):195-206 Transformational outcomes associated
with parenting children who have disabilities. Scorgie K, Sobsey D.
- Entrez-PubMedPit-Ten
Cate IM, Loots GM. Experiences of siblings of children with physical disabilities:
an empirical investigation. Disability Rehabilitation 2000
Jun 15;22(9):399-408
- Entrez-PubMedKrauss,
MW., 1993 Child-related and parenting stress: similarities
and differences between mothers and fathers of children with disabilities.
American Journal of Mental Retardation 97 (4) (1993) 393-404
- Entrez-PubMedHirst
M. Dissolution and reconstitution of families with a disabled young person.
Dev Med Child Neurol 1991 Dec;33(12):1073-9
- Entrez-PubMedWalker
LS, Ford MB, Donald WD. Cystic fibrosis and family stress: effects of age
and severity of illness. Pediatrics. 1987;79:239-246.
- Entrez-PubMedVan
Riper M, Ryff C, Pridham K. Parental and family well-being in families of
children with Down Syndrom: a comparative study. Resarch Nursing Health. 1992;15:227-235.
- Entrez-PubMedTaanila
A, Kokkonen J, Jarvelin MK. The longterm effects of children's early-onset
disability on marital relationships. Developmemtal Medicin Child Neurology
. 1996;38:567-577.
- Entrez-PubMedSaddler
AL, Hillman SB, Benjamins D. 1993 The influence of disabling
condition visibility on family functioning. J Pediatric Psychology; 18(4):425-39
- Entrez-PubMedMent
Retard 2000 Jun;38(3):262-75 Group action planning as a support
strategy for Hispanic families: parent and professional perspectives.Blue-Banning
MJ, Turnbull AP, Pereira L.
- Entrez-PubMedMent
Retard 2000 Apr;38(2):138-53 Successful friendships of Hispanic
children and youth with disabilities: an exploratory study. Turnbull AP, Blue-Banning
M, Pereira L.
- Entrez-PubMedMent
Retard 1996 Oct;34(5):280-93 Family perspectives on problem
behavior. Turnbull AP, Ruef M.
- Entrez-PubMedJ
Child Psychol Psychiatry 1987 Sep;28(5):715-30 Retarded children
and their siblings. Gath A, Gumley D.
- Entrez-PubMedBr
J Psychiatry 1986 Aug;149:161-71 Family background of children
with Down's syndrome and of children with a similar degree of mental retardation.
Gath A, Gumley D.
- Entrez-PubMedDev
Med Child Neurol 1984 Aug;26(4):500-8 Down's syndrome and
the family: follow-up of children first seen in infancy. Gath A, Gumley D.
- Questionnaire results of 670 parents and siblings of Down syndrome
children. Presented at the 10th Annual David W. 6th Workshop on Malformations
and Morphogenesis; May 25, 1989; Madrid. Spain
- Entrez-PubMedAm
J Orthopsychiatry 1985 Oct;55(4):614-7 A parental perspective on stress and
coping. Lipsky DK.
Disability Reality
