Week 1 Introduction of yourself, expectations... Week 2: Models and determinants of health, disease, disability, impairment, concept of Ableism and transhumanism Week 3: International Documents Week 4: How to evaluate: Evaluation, measuring, analysis and outcome tools: DALY/QUALY/HEALY, HUI and others Week 5 Nanomedicine/ Nanodrugs Week 6 Nanomedicine and the South the 10/90 health research gap, Week 7: Cognitive/neuro sciences Week 8 Synthetic biology Week 9 Aging, longevity, immortality research Week 10 The case of genetic testing: Where to draw a line? Week 11 Genetic and non genetic therapy versus genetic and non-genetic enhancement; Week 12 Governance of science and technology and health research Week 13: Final discussion
Week 1: Get to know each other. Tell a little bit about who you are, what your background is, what your exposure was/is to which bioethics issues and to disabled people and their issues. Tell me what you hope to gain from this course.
Week 2: UN Convention and the Rights of persons with Disabilities; The situation of disabled people (in particular the double discriminated ones women, indigenous, from developing countries) in the world
Week 3: a)Models of disability and health b)perception of disability and self perception by disabled people
Week 4: Key ethics theories: History of ethics and different ethics theories. Impact and relation of different ethics theories towards different disability models Week 5: The special case of bioethics: Intro and the players:
Week 6: Key bioethics theories: How are disabled people viewed within the bioethics debate and how are disabled people (academic and non academic) involved in the bioethics debate
Week 7: The concept of personhood
Week 8: the issue of euthanasia/end of life
Week 9: The case of research on non competent people:
Week 10: The case of non treatment of newborns/futile care/infanticide/mercy killing
Week 11: The case of organ transplantation
Week 12: the case of access to water and sanitation
Week 13: final discussion
CML 4104D – Studies in Public Law: Emerging Sciences and Technologies: Legal, Ethics, Governance and Policy Discourse (3 credits)
Week 1: Introduction
Week 2: Models and determinants of health, disease, disability, impairment and wellbeing; some key health research concepts (Burden of Disease, Disability Adjusted Life Years…) the concept of personhood, human security and cultural identity, Key ethical theories and international documents mentioning health and bioethics, Ableism,
Week 3: Nanomedicine and Longevity/Immortality Research: Where are we? Where might we go? What are the legal questions?Therapy vs. enhancement; Therapeutic vs. non- therapeutic enhancement; The dynamics of medicalization and ‘transhumanization of medicalization’; Enhancement of Animals
Week 4NBICS medicine and the South:
Week 5 Nano-material science: Where are we? Where might we go? What are the legal questions?
Week 6: From natural commodities to nano based commodities to Molecular nanotechnology, molecular manufacturing Star Trek Food replicator Where are we? Where might we go? What are the legal questions?
Week 7 Nanofood, Nanowater, Nanoforrestry, Nanoenergy, Nano-enabled fuel: Where are we? Where might we go? What are the legal questions?
Week 8 Nanoweapons: Where are we? Where might we go? What are the legal questions?
Week 9: Cognitive science and neuroscience: Where are we? Where might we go? What are the legal questions?
Week 10 Synthetic biology (design of new life forms) :Where are we, where might be go and what are the legal questions?
Week 11: genetic discrimination law, wrongful life, wrongful birth, wrongful pregnancy tort laws. Genetic selection for what? When? What do we learn from bio-regulation?
Week 12: Patents: (Nano, Synthetic Biology)
Week 13 Final discussion: Final discussion: Governance of science, technology: What to do? What is the role of Law? And anything you want to say about the course
